This post is inspired by Shift MS’ Youtube channel MS Reporters. MS reporters is a video library chock full of amazing content made by MSers for MSers, and I'm just loving this resource! They have a comprehensive video collection for people who are newly diagnosed where experts share three things every newly diagnosed MSer should know, and it got me thinking, what would be the 3 things I would say to someone newly diagnosed with MS? There were just so many things that came to mind, but when it came to narrowing it down to just 3 things I immediately focused on one of the hardest things I had to deal with: The emotions of being newly diagnosed.
This weeks post is part of A Chronic Voice's October Linkup Party which is a monthly get together for people with chronic illness to share and learn from each other's experiences. October's Writing Prompts were: - Inspiring - Dreaming - Reducing - Creating - Listening My response to this month's writing prompt is about how I maintain motivation despite my MS.
For me, one of the most confusing things about Relapsing-Remitting Multiple Sclerosis (RRMS) was understanding if I was experiencing a relapse or not. No one tells you what a relapse is and isn't, well no one told me that is, and I'm sure I'm not alone. How do you know if you might be experiencing a relapse? And at what point do you seek medical attention? When I was first diagnosed, I was only told that “if I experienced a relapse”, I had to let the neurologist know. But what exactly was a relapse? Is it when your symptoms come back?...That was my understanding of the definition of a relapse at the time. A relapse is when I'm experiencing symptoms right? Wrong! There's a bit more to it than that.
When you're diagnosed with a chronic illness, you are suddenly thrust into an unfamiliar world, and it doesn't come with a user guide. All of a sudden you're feeling like you have lost control and you're left wondering if you will ever get it back. When I was diagnosed with MS, I found myself searching for ways of coping and navigating life with this illness. Over the course of my MS journey, I have discovered skills that have helped me recover control in my life. Skills that put me back into the driver's seat. Today I want to share some of the things I have learnt that have made the biggest impact towards recovering control of my life.