My Blog About GenY Life With Multiple Sclerosis
I’ve always been outspoken about my health, self-advocacy came naturally to me. When I decided to start blogging there was a rush of things I wanted to say come to mind.
I’ve started keeping notes of things to write about it’s starting to get very long.
Where to begin?
Well, it makes sense to start by saying hello and introducing myself right?
I’m in my 30’s which makes me Gen Y apparently. I thought I was Gen X up until studying sociology, that’s where I found out I was actually Gen Y.
I was quite taken aback because there was a lot of criticism towards this generation. Criticism regarding their tendency to be lazy and have a sense of entitlement. I was none of those things! Neither were any of my peers. I’ve since realised that each generation endures these kinds of slurs from their predecessors. It must be a right of passage. Baby Boomer to Gen X, Gen X to Gen Y and now it’s Gen Z’s turn.
So there you have it I’m Gen Y, and in my late 20’s I was diagnosed with Multiple Sclerosis.
It was such a shock, that seemed to me to be much too young to have Multiple Sclerosis. However, it’s a common age for diagnosis. So I found myself, Gen Y, with a chronic illness which makes me a Millennial Patient.
I was thrust into a world of Baby Boomers as that was the generation of most of my doctors and specialists. Long story short there were many misunderstandings, incorrect assumptions and A LOT of head-butting.
Because I was rude, disrespectful and didn’t listen to my doctors. It looks like I was living up to those Gen Y stereotypes. I disagreed with them a lot. It felt like the doctors didn’t give me enough time and did not understand me at all. In turn, I found them to be rude and disrespectful to me. They never gave me opportunities for questions and left me confused, frustrated and often depressed after an appointment. A decent bedside manner was hard to find. I found myself reaching out to the internet many times as each medical appointment left me with more questions than answers.
That is where I discovered online support.
The aim of this blog
Things such as:
- How I start a conversation with my doctor about changing medication.dia
- Setting up a good support network;
- Disclosing my MS to an employer or new person in my life;
This blog can also shed light on how millennial patients such as myself engage with health services. The fact is we do things a little differently.
So, welcome to my blog and thank you for reading. 🤗