Skip to content

Category: #spoonie

Inside a week of MS brain fog

Inside MS Brain Fog

MS brain fog is exactly as advertised. There is literally a fog in my mind. Take a glimpse into my week with cognitive fatigue.

Managing Poor Sleep

Managing Poor Sleep – A Night At The Sleep Clinic

There's a saying that gets used in medicine, if you hear hoofbeats, think horses, not zebra. It means don't go looking at uncommon causes (zebra) without checking for more common causes first (horses). Well, when it comes to my health I always assume it's the zebra. I jump to the conclusion that every little thing is MS related while ignoring that it could be something much more commonplace. Fortunately, my GP has reigned in my tendency to overreact, and now I wait for her to eliminate more common causes first.

MRIs, Mindfulness and Progressive Relaxation

The Magnetic Fortress Of Solitude

"That was the best MRI appointment", said no one ever, but today I had the least unpleasant MRI. What makes an MRI bearable? You don't always get a considerate technician, and even with the best operator, you will still need to deal with discomfort. I've developed a bit of a game plan when I'm facing time in the tube.

Working with your doctor through self advocacy.

Self-Advocacy 101

I’m writing this post from the hospital day unit, everything's fine. I'm just here to have my MS treatment changed, it's standard procedure to be under observation for your first dose. I had raised concerns with my doctor regarding my previous therapy as I was always unwell and had missed months of work.What I want to share in this post is how I approached the topic of changing meds with my specialist.

All original content on these pages is fingerprinted and certified by Digiprove